Senate ResolutionChaptered/Signed
J 945: Memorializing Governor Kathy Hochul to proclaim July 2025 as MECP2 Duplication Syndrome Awareness Month in the State of New York
What J 945 does, verified September 28, 2025
The bill aims to raise awareness about a rare genetic disorder called mecp2 duplication syndrome. This disorder is caused by a duplication of DNA on the X chromosome and can lead to severe health problems, including gastrointestinal issues, respiratory infections, and seizures. Some individuals with the disorder also exhibit features of autism. Despite the challenges, research has shown that proper stimulation, such as education, exercise, music, and social interactions, can be highly effective in managing the disorder. However, caregivers may experience anxiety, depression, and emotional exhaustion due to the disorder. The bill seeks to recognize the importance of awareness and support for individuals with mecp2 duplication syndrome, as it was only formally recognized in 2005. Ongoing research has shown promise for the development of effective treatments, including a potential anti-sen…
Bill journey
✓IntroducedComplete
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✓First Chamber FloorComplete
✓Second ChamberComplete
✓GovernorComplete
6ChapteredCurrent
Last action: REPORTED TO CALENDAR FOR CONSIDERATION (2025-05-13)Alert me
Quick answers about J 945
- What is the current status of J 945?
- As of September 28, 2025, J 945 is recorded as "Chaptered/Signed": it has been signed by the Governor and chaptered into law. The last recorded action, on May 13, 2025, was "REPORTED TO CALENDAR FOR CONSIDERATION".
- Did J 945 pass?
- Yes. J 945 passed both houses and was signed into law (last action May 13, 2025). New York laws take effect on the date written into the bill, often immediately on signing or a set number of days afterward.
- Who wrote J 945, and where is it now?
- J 945 was authored by Sen. Dean Murray with 12 coauthors.
Author and sponsors
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| May. 13, 2025 | REPORTED TO CALENDAR FOR CONSIDERATION |
| May. 13, 2025 | ADOPTED |
| May. 06, 2025 | REFERRED TO FINANCE |
Latest bill textIntroduced version, May 6, 2025 · 332 words
Senate Resolution No. 945 BY: Senator MURRAY MEMORIALIZING Governor Kathy Hochul to proclaim July 2025 as MECP2 Duplication Syndrome Awareness Month in the State of New York WHEREAS, MECP2 duplication syndrome is usually caused by duplication of DNA on the Xq28 region of the chromosomes; and WHEREAS, Despite MECP2 duplication syndrome's being a neurodevelopmental disorder, it causes multisystemic health problems, such as severe gastrointestinal symptoms, frequent respiratory infections, and treatment-resistant seizures; and WHEREAS, Some individuals have large duplications which include many other genes, and the full extent of phenotypes, due to duplication of other genes, is not completely understood at this time; and WHEREAS, Recent studies have shown a link between MECP2 duplication syndrome and autism, and many with this syndrome do have distinct features of autism; and WHEREAS, Patients with MECP2 duplication syndrome are highly responsive to proper stimulation such as education, exercise, music, age-appropriate social interactions, and related activities; and WHEREAS, MECP2 duplication syndrome can cause significant anxiety, depression, and emotional exhaustion for caregivers; and WHEREAS, MECP2 duplication syndrome was not formally recognized until 2005; and WHEREAS, MECP2 duplication syndrome research, which has shown that symptoms of the disorder can be reversed in mice, using a small anti-sense oligonucleotide, gives hope for the future development of effective treatments for humans with this disorder; and WHEREAS, Clinical readiness studies have been done to identify ways to monitor response to therapy and ensure safety as a preparation for future clinical trials; and WHEREAS, Natural history studies are ongoing to define the natural course of MECP2 duplication syndrome over the span of 12-18 months to prepare for the start of clinical trials; now, therefore, be it RESOLVED, That this Legislative Body pause in its deliberations to memorialize Governor Kathy Hochul to proclaim July 2025 as MECP2 Duplication Syndrome Awareness Month in the State of New York; and be it further RESOLVED, That a copy of this Resolution, suitably engrossed, be transmitted to The Honorable Kathy Hochul, Governor of the State of New York.
Text of J 945 as introduced, from the official record. Connect Plus keeps every version and highlights what changed.Compare versions