J 464: Memorializing Governor Kathy Hochul to proclaim April 2025, as TAR Syndrome Awareness Month in the State of New York

 Senate Resolution No. 464 BY: Senator WALCZYK MEMORIALIZING Governor Kathy Hochul to proclaim April 2025, as TAR Syndrome Awareness Month in the State of New York WHEREAS, The State of New York takes great pride in recognizing months of awareness for significant medical conditions with hopes of increasing education as well as finding treatments and cures; and WHEREAS, This Legislative Body is justly proud to memorialize Governor Kathy Hochul to proclaim April 2025, as TAR Syndrome Awareness Month in the State of New York; and WHEREAS, Thrombocytopenia-absent radius (TAR) syndrome is a rare genetic condition characterized by the absence of the radius bones in the forearms and low levels of platelets in the blood (thrombocytopenia); and WHEREAS, Thrombocytopenia prevents normal blood clotting, resulting in easy bruising and frequent nosebleeds, with the potential for life-threatening episodes of severe bleeding in the brain and other organs; and WHEREAS, Thrombocytopenia usually appears during infancy and becomes less severe over time, with platelet levels often normalizing in later childhood and into adulthood; and WHEREAS, The physical findings and severity of TAR syndrome vary among affected individuals and can include skeletal abnormalities of the arms, legs, or hips, as well as heart defects, kidney defects, and difficulty digesting milk; and WHEREAS, Intellectual development is usually normal and long-term prognosis is positive in children with TAR who survive the first few years of life; and WHEREAS, During this month, it is important to educate others about TAR syndrome and support those affected with this disorder and their families, as well as promote continued medical research and advancements; and WHEREAS, In recognition of the financial, physical, and psychological impact that TAR Syndrome has on those affected, it is incumbent of the citizens of the State of New York to support the courageous individuals living and coping with the condition, and to advocate for life-saving treatments and research; and WHEREAS, It is the sense of this Legislative Body to recognize the tireless advocates and healthcare providers who spend so much of their time and resources battling this syndrome that affects so many; now, therefore, be it RESOLVED, That this Legislative Body pause in its deliberations to memorialize Governor Kathy Hochul to proclaim April 2025, as TAR Syndrome Awareness Month in the State of New York; and be it further RESOLVED, That a copy of this Resolution, suitably engrossed, be transmitted to the Honorable Kathy Hochul, Governor of the State of New York.